One year old Jaxon Buell was born missing most of his brain. He has a defect called microhydranencephaly, but the one year old has outlived the expected lifespan of infants born with the same condition.
According Center for Disease Control and Prevention. over 4000 infants are born with anencephaly in the US each year and die within the first year, but Jaxon Buell has a type of anencephaly that is even less common, CBS Reports:
“Microhydranencephaly — the combination of a small head and malformed brain along with an absence of brain hemispheres that are replaced by fluid-filled sacks”
Missing part of his skull and brain, Jaxon’s survival is remarkable. Father Brandon Buell explains:
“Every doctor we’ve talked to is fascinated that Jaxon is here today, and they can no longer predict a prognosis,” Brandon Buell wrote in a Facebook post. “We know the reality behind this better than anyone else, what Jaxon is up against, and that his life is already miraculous at this point.” ….
“Jaxon’s tiny footprints will have a lasting impression on this world, and that he has already touched and inspired more lives in one year than most of us ever will in our lifetime,” Brandon Buell wrote on Facebook. “For his life, I am better, I am blessed, I am grateful, and I am quite simply, one proud ‘Addy.'”
The birth defect causes other complications to Jaxon’s immune system such as seizures and also difficulty eating that require expensive treatment. From Tavares, Florida, United States, Brittany and Brandon Buell, Jaxons parents, make efforts to raise funds through facebook and a Gofundme page for Jaxon medication and treatment. This year they have raised funds of over 70 000 to pay for their son’s treatment.
By ultrasound, the couple discovered Jaxon’s defect around 4 months into the pregnancy. They were given the option to abort, but choose not to. Why would the parents choose against abortion with the such a low chance of survival and a normal life for Jaxton?
Tanveer man from Daily Mail Online explains:
“Doctors gave them the option to terminate the pregnancy at 23 weeks but the young couple, who are against abortion, believed it was not their decision to make.
Brandon, who is an assistant to the CEO of a small community bank in Florida, said: ‘We went home that night thinking if you are telling us to abort, we would never know what Jaxon could have been, if he could have survived.’ “
Even with most of his brain missing, his parents say that Jackson can talk a little and shows emotion like other infants do. See it for yourself in this video of Jaxon:
Jaxon has thousands followers on the facebook page dedicated to him an his story. https://www.facebook.com/WeAreJaxonStrong.
Many people have also donated to help pay for Jaxon’s treatment. For those interested, the gofundme donation page can be found here https://www.gofundme.com/eld1og